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Re: No more free gen testing with the Periodic Paralysis Association?

Stephany, I saw a trial that is still recruiting in Holland. You have to have confirmed genetic testing to qualify, however I'm thinking they may be able to tell you where you might get full sequencing done for free or participate in a similar study that includes genetic testing:

NDM Study

Jan

Type of Myotonia: Thomsen's

Country: US

Re: No more free gen testing with the Periodic Paralysis Association?

My clcn1 test was $1000.

Type of Myotonia: Beckers

Country: USA