JAN,
THANK-YOU VERY MUCH FOR REPLYING SO QUICKLY TO MY REQUST OF CONTACTING PEOPLE WITH PARAMYOTONIA CONGENITA.
I AM A MEMBER OF PPA AND HAVE RECENTLY BEEN IN CONTACT WITH THIER ASK THE EXPERTS TEAM.AND JACOB LEVITT MEDICAL DIRECTOR OF PPA GAVE ME THE NAME AND E-MAIL ADDRESS OF A SPECIALIST IN LONDON WHO SPECIALIZES IN MYOTONIC DISEASES.AND I HAVE MADE CONTACT WITH HIM AND AM NOW WAITING FOR MY NEUROLOGIST TO WRITE A REFERRAL LETTER.
I SHALL BE SO RELEAVED IF I CAN GO AND SEE HIM.
I TRIED CONECTING TO THE WEB SITE YOU SUGGESTED AGAIN,JAN BUT NO LUCK UNFORTUNATLY.
I ALSO USE THE M.D. U.K. SITE,M.D.A. U.S.A. WHICH IS VERY HELPFUL TOO AND OCCASIONALLY THE WORLD MUSCLE SOCIETY SITE.
I WOULD STILL VERY,VERY MUCH APPRCIATE HEARING FROM PEOPLE WITH PMC.

THANK-YOU ALL FOR YOUR HELP AND SUPPORT. BENITA.U.K.

Type of Myotonia: deleted

Country: deleted