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Re: Re: From Germany [Myotonia Congenita Thomsen]

Hi!

Big thx for the contact information! I'm going to call there today. We also have the "Deutsche Klinik für Diagnostik" in Wiesbaden. I think, I'll try to get a date there. They have some good neurologists specialized to muscle desease there. Thats easier for me, Ulm is still about 300 or 400 kilometres away from Wiesbaden.

Do you have any experience with Mexitil or other medicaments?

Type of Myotonia: 172559690

Re: Re: Re: From Germany [Myotonia Congenita Thomsen]

Hi

I got a date at the "Deutsch Klinink für Diagnostik" in about one Month. I am going to some have muscel ecg's and magnetic resonance imaging (maybe the wrong expression^^) etc, just everything oO. I have to be there for three days, so I guess (at least I hope), I'll get a good treatment and a good medicine .... the tiredness really sucks these days, when the summer comes :/

I'm also going to call Prof. Dr. F. Lehmann-Horn for some more information.

Lash

Type of Myotonia: 172559690

Re: From Germany [Myotonia Congenita Thomsen]

I'm glad you got in to the clinic. After three days of testing you should have a very good idea what your condition is and how to treat it!

Please let us know what you find out and what type of treatment is recommended.

Jan