Return to Website

Myotonia Congenita Forum

 

This forum has been closed for comments.  You can still search archived messages.

 

Visit  the Non-Dystrophic Myotonias  Facebook Group

Myotonia Congenita Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: Re: Re: From Germany [Myotonia Congenita Thomsen]

Hi

I got a date at the "Deutsch Klinink für Diagnostik" in about one Month. I am going to some have muscel ecg's and magnetic resonance imaging (maybe the wrong expression^^) etc, just everything oO. I have to be there for three days, so I guess (at least I hope), I'll get a good treatment and a good medicine .... the tiredness really sucks these days, when the summer comes :/

I'm also going to call Prof. Dr. F. Lehmann-Horn for some more information.

Lash

Type of Myotonia: 172559690

Re: From Germany [Myotonia Congenita Thomsen]

I'm glad you got in to the clinic. After three days of testing you should have a very good idea what your condition is and how to treat it!

Please let us know what you find out and what type of treatment is recommended.

Jan