My other half, Andrew is 27, we live in england but are both NewZealanders. He had alot of trouble geting the diagnosis in NewZealand, and i beleive they tested him for everything under the sun before finally making a diagnosis of MC when he was 16.
He has not yet had genetic testing but we are hoping to get this under the NHS while we are living here.
The only problem with the smoking is the coughing reflex is not the same as normal people, and he coughs quite a bit been a smoker.
Andrew gets really sleepy, not just when he's been smoking but any time he relaxes, or sits down he falls asleep, like we went to see the devinci code at the movies and he only managed to stay awake for half of it which sucks, even though i kepted elbowing him to stay awake. He cant watch TV either cause he falls asleep!!!