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Re: Re: Re: Living with Thomsen's for 50 years & on a drug I don't see anyone else on.

Rich,

Here's a site in Canada where you can order it with a prescription. You can get either 200mg or 300mg capsules/tablets.

Generic Quinine Sulfate

I'll also post this on the recent discussion about quinine.

Jan

Re: Re: Living with Thomsen's for 50 years & on a drug I don't see anyone else on.

I'm too appreciate your story, I'm experiencing the same symtoms as well as I approach my 50th birthday in September, I'm more concern of this fatiqueness in our bodies, I would like to know more about this subject as oppose to what is already noted and stiffness, walking slower, shorter steps prevents me from tripping, as you stated it's very scarey to fall, so have patience take it easy and you should be okay, as stated I really would like to combat the fatique what causes it and is there anything can be done.

God Bless
Howard

Re: Living with Thomsen's for 50 years & on a drug I don't see anyone else on.

I had to laugh when you mentioned there was no letting go of the ski rope. It reminds me of aii of the buses I had to take ,standing room only and hanging on to the hand holds unable to pry myself loose when my stop came up.And there was a many a time when I did fall in front of the same buses when my mom was trying to shove me from behind to hurry me along to cross the street. I am almost 60 now ,and I was diagnosed when i was 35. All those years before noone could come up with a name for it. My mom thought that I was falling in front of traffic to get attention. When diagnosed ,I was given Dilatin. It made me drowsy. Also the benifits wore off after about 5 yrs. Ive been taking mexilitine with great sucess and no apparent side effects.Keep up your wonderful sense of humor. tina