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Re: Re: First exam

The way i usually demonstrate my myotonia, is by clenching my fist as hard as i can, and then trying to release it quickly.This always has worked for me, but since everyone is different,it may not be appropriate for you.It takes a couple of minutes for it to relax afterwards.I also thought an EMG would be obvious to them as well.

Type of Myotonia: dw307,2

Re: Re: Re: First exam

Hi, I, too, usually demonstrate to the unknowing and curious the clenched fist. I ask the person to clench their fist along with me and it's pretty clear when I open my hand very slowly at first. After a couple of times I can usually open my fist as fast as someone without mc. Have a sunny day!!!

Re: Re: Re: Re: First exam

Hi
When I first came to this site I had been diagnosis as 'having evidence of an unknown myotonic disorder', the longer I interacted, and read, on this stite. I came to the conclusion that I don't have MC. Jan encouraged me to go to MDA Clinic. Where I find the doctor has reversed himself, but I discribed enough of the visit that the MDA doctor finds the first statement was correct so he tested me. He was getting mixed readings so he sent me to a neurologist who diagnosis me as Paramyotonia Congenitia as he ruled out MC, and early stages of muscular dystrophy. There was nothing else that fit. Jan has always encouraged me to come and visit, along with my up dates.
My job began to give me lots of problems over the PMC, enter the state, they have questions some the same as my job. So they send me to a physical specialist for a capcity evaluation. He over turns the diagnosis of PMC as being to rare to have. When I got his medical records he is blaming my obesity for my muscle problems. Every doctor I have seen, and I have seen a lot now says I'm not obese, overweight yes, and I'm not carrying the weight in a good way, shed twenty to forty pounds and I'll be fine.
Anyway this doctor does not believe a thing I have told him, absolutely nothing. He has over thrown my neurologist to cover himself he has refered me to the UW to a Dr. Weiss, and now they don't know what to make of me, so they are putting me through a lot of tests.
Check out the site you'll see what I have been through. It is my belief that I do have PMC. Contary to the internet mine seems to be progressing.
My story is on here. One of the things I have learned is get you medical records frequently, after a diagnosis, after a referral. Somewhere I say why.
I'm sleepy so I have to go. Jan I hope you beat this stuff, and get to feeling better. Rosa