Timjoe,

I didn't make myself very clear. I am slowly going to come off Dilantin and try just Lyrica and Elavil. I had no side effects at all with Dilantin. Stiffness got better with it and then stiffness would become worse for days to weeks. Bad and good days with Dilantin. I will say I am hesitate to discontinue it but how will I ever know? The Ps is not knowledgeable about Myotonia. In my experience as a nurse, I found that the majority of the time it took a minimum of 3 drugs to get the patient's symptoms under control.
Doctors and the pharmacist would get a little to quite frustated with me about changing medicines every 2 weeks. But I dealt with their attitudes for my patients. Now that I am " a person with an illness" I expect no less.

Judy,
I would check with your MDA Dr. before I stopped taking the med.'s he/she presribed, and hold off on the Lyrica until you get their OK.