I have worked on a cancer floor and been a Hospice Nurse. Pain - Pain - Pain. I have seen enough people suffering. And, I have seen enough doctors' orders to KNOW that many do not know how to treat pain.

I truly believe that MC is the cause of all my pain. That MC induces Myofasical pain and minics Fibromyalgia and any other type of pain I may suffer.

Until there is more research and Doctors are told how to treat MC, then we will hopefully get some relief.

In the mean-time, we have each other to talk to. And this is how we will learn (from each other) what may relieve our pain.

We have a well-informed moderator, freely giving us her time and knowledge. At this moment, she is in need of all our prayers.

We have hope, don't forget it.

Advocacy; getting the word out; bring attention to MC
researchers the plight of MC patients. Thats the key to
addressing the lack of treatment options and understanding the potential relationship of any symptom to MC, like muscle pain.
Besides the letter another beneficial way to participate
would be to join the National registry that is targeted for neurological channelopathies, CINCH
http://rarediseasesnetwork.epi.usf.edu/cinch/index.htm

Thanks, Bruce - I registered. We have to be proactive, and the best way we can insure better information about our conditions is to participate at every available opportunity! Lois

I registered, too. Thanks----Judy