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Re: Still Frustrated in Arizona!

Beth,

It is not in our heads. We should not have to justify ourselves but-- I find that I do. BUT, realy, and truly (we know) we shouldn't have to justify ourselves.

Re: Still Frustrated in Arizona!

Again, that is why bringing as much information to every doctor as you can will ultimate force them to acknowledge that you have an actual medical condition, and pursue its diagnosis. Another thing you can do, which many of us don't like to do, but it's effective, is to mention that you will write a letter to your insurance company, medical group, and state medical society, to report that the physician is dismissive of your symptoms, and unwilling to do diagnostic tests which are recommended for the suspected conditions. They usually will be so surprised to find a patient is smart enough, and proactive enough to know their rights, that they will comply asap. lois

Re: Still Frustrated in Arizona!

Hi Beth,
I seem to have some of the same issues as you. I have too much yeast in my body. That, on top of the MC, causes debilitating fatigue. I've been cutting out sugar, yeast breads, wine, mushrooms, and aged cheeses, and it has helped me so very much. SUGAR is a very big No No. If you have fatigue, take a very good look at your diet and watch for high fructose corn syrup hidden in foods. It gives me the same problems as sugar. If you stay with Jan's diet on the website, I think it might help: www.myotoniacongenita.org. There is also a good book by Dr. Don Colbert, I think it's called, "What you don't know may be killing you." Also, you may want to check out the websie www.drmartingallagher.com. He's an M.D., but also a chiropractor who uses a wholistic approach to medicine. He has written a book called "Medicine for the 21st Century." Diet is everything, I believe, Beth. The wrong foods can wreak havoc with your body. I hope this helps. Mary

Re: Still Frustrated in Arizona!

If you think about baking bread, the ingredient which ACTIVATES yeast is sugar! It feeds and grows on sugars. Another thing you can do to help minimize yeast's effect on you is to add yogurt and apple cider vinegar to your diet. The bacilli in yogurt and the acidifying nature of the vinegar help to neutralize yeast. You want to use plain, or at least sugar-free, yogurt (some people say they don't like it, but some of the "health food" brands taste enough like sour cream that you can use them on baked potatoes, chili, tacos, etc., or even a dollop with some sunflower seeds or tomato. Use a natural cider vinegar, too - try it as part of an olive oil and vinegar salad dressing, or mix a teaspoon in some juice or lemon water... it's an acquired taste, but actually pretty refreshing! An added benefit of the cider vinegar is that it seems to help arthritis a bit! Lois

Re: Still Frustrated in Arizona!

This kept me up half the night, but I was too lazy to get up and correct my error! What I meant to say is that Cider vinegar is Alkalinizing (sugar is quite acidic, and yeasts like that). Making your body even just slightly more alkaline makes the environment much less appealing to yeasts. Sorry for my sloppy thinking last night! Here are a couple of websites to learn more about alkaline foods, which most people don't get enough of, relative to their acid intake...
http://www.thewolfeclinic.com/acidalkfoods.html
http://home.bluegrass.net/~jclark/alkaline_foods.htm
http://www.greatestherbsonearth.com/articles/acid_alkaline.htm
There are others, but if you're interested, it's a place to start! Lois

Re: Still Frustrated in Arizona!

and a couple for cider vinegar's benefits:
http://www.naturodoc.com/library/lifestyle/umeboshi_vinegar.htm
http://ezinearticles.com/?Vinegar-and-Honey-Remedy&id=415064
http://altmedicine.about.com/od/applecidervinegardiet/a/applecidervineg.htm
: ) lois

Re: Re: Still Frustrated in Arizona!

Hi Lois,
Your info has been so helpful to me. Thank you!! I hope it helps you too, "Still frustrated in Arizona." No sugar, no yeast of any kind, etc. has made all the difference for me. I kept thinking things like, "Gee, it's just a little bit of sugar." But....add that little bit to the hidden sugars in foods, such as high fructose corn syrup that seems to be prevalent in so many foods nowadays, even breads and cereals, and the amount of sugar ingested at the end of the day is quite sizeable. Even now when I go out to dinner, I put no salad dressing on my salad. I ask for no sauces on my meat or fish. I don't know what's in it, and it's not worth it to me to feel bad all the time because I indulged in a "little bit" of sugar. I have gone 3 weeks now with no sugar or yeast products, and it has been life-changing.

Re: Still Frustrated in Arizona!

Mary - I'm SO glad it was helpful! : ) lois