I don't know if this has been discussed. If so,oh well, it's worth talking about again!
Jan, I'm sure you can shed some insight on this and I hope you do.
If you have MC or any other type of Neuromuscular disease, be careful if you are considering surgery.The Anesthesiologist will tend to use Succinylcholine.Though they have meds to combat the effects of the drug and a lot of hospitals are familiar with it, why take a chance ? This stuff could kill you ! Small town hospitals are less likely to know about it's effects on Muscle patients. I suggest you wear a necklace or bracelet warning of this drug and that you have MC.
Jan, correct me if I'm wrong but, I believe it causes paralysis which leads to heart failure.I also believe it to be a factor in Malignant Hyperthermia which your body temp can rise to as much as 110 degrees.Set it straight girl !
Hi David - You can search and find quite a lot of discussion about this on this forum, and if you go to Jan's web page, you will see that she addresses this, and has a link, as well. There are articles you can print out for your physicians - many really know nothing about this, and are grateful for the heads up.
Lois is my right-hand "man" and has been a tremendous resource with her nursing experience, but unlike Jack Bauer, she does need to sleep ("Jack Bauer does not sleep. The only rest he needs is what he gets when he's knocked out or temporarily killed.")
One of the main reasons I started this site and forum was to educate people with MC about the dangers of anesthesia. My mom had cardiac arrest during routine surgery and was revived but woke up with some serious paddle burns on her chest.
We are more likely to have our hearts stop because of potassium levels building up, but we can develop malignant hyperthermia-type reactions, too. It's always best to use the MH protocol.
Thanks for a double-giggle! I enjoyed that.
David, I usually only get on here in the evening. But I do love Jan, and this site has been such an enormous help and boost for me, that I really like to share whatever I can, even if it's just support and empathy.