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Re: Living with Thomsen's for 50 years & on a drug I don't see anyone else on.

I had to laugh when you mentioned there was no letting go of the ski rope. It reminds me of aii of the buses I had to take ,standing room only and hanging on to the hand holds unable to pry myself loose when my stop came up.And there was a many a time when I did fall in front of the same buses when my mom was trying to shove me from behind to hurry me along to cross the street. I am almost 60 now ,and I was diagnosed when i was 35. All those years before noone could come up with a name for it. My mom thought that I was falling in front of traffic to get attention. When diagnosed ,I was given Dilatin. It made me drowsy. Also the benifits wore off after about 5 yrs. Ive been taking mexilitine with great sucess and no apparent side effects.Keep up your wonderful sense of humor. tina