I love what you are trying to do. Thanks so much for all your effort on behalf of those with Myotonia Congentia. What you might want to add is that the over developed muscles can cause parents with young Thomsen Disease children severe consequences. We had a doctor when my son was only about 4 or 5 that we went to so we can find help about what was going on with our child tell us that he was going to report us to the state for allowing our child to pump weights. Imagine that. My son had these muscles that we had no clue where they were coming from and a doctor was going to report us to the state for child abuse.