Just curious as to anyone's experience and opinions on the drug Marinol. My son was investigating it and his doctor said he has had positive feedback with other patients taking it that has muscle issues but not a Thomsen's Disease patient as my son is his first.
Jan??? Anyone else??? I would love your input on the safety of this drug, side affects and if anyone has used it.
If you do a search on Marinol you'll see two posts where I addressed that as well as Sativex. Since you don't know for sure if your son has MC, it's hard to predict if it would help. I think there would be a greater benefit for a chloride channel disorder over a sodium channel disorder. There are also some side effects to consider, but it would be interesting to see if it helps.