Hey Matthew,

How come you have to go to London for your diagnosis?

I never thought of having an MC related tattoo, got a Rolling Stones tongue but the wife won't let me get another one!

I also were clumpy orthotic boots so I walk even more like Frankenstein's monster when I'm on bad a day!

Type of Myotonia: Becker's

Country: England

Hi Pete i need to go 2 london coz my Doc up here has done all he can, so he said Dr Hannah was the only one left who could help.

I have been to see him a few times and had a few tests, EMG,muscle biopsy, blood tests,ECG all the usuall stuff.

Type of Myotonia: Thomsen's

Country: scotland

I look forward to seeing that tattoo!

Type of Myotonia: Myotonia Congenita, Becker's type

Country: USA

I thought Edinburgh was a centre of medical excellence Matthew?

I see a Dr Ming in Hull who got me on Mexitil. He knows a lot about MC and has no trouble speaking to me about it, unlike some other doctors I've met.

Anyway, good luck with Dr Hannah, I always like visiting London myself anyway.

Type of Myotonia: Becker's

Country: England