I've had the 'drained/weak' feeling but I couldn't say that I've felt ill exactly, just unfit!

The worst days are those when it is not limited to just waking up but last all day!

Type of Myotonia: Becker's

Country: England

Pete:

Sometimes when it's bad it does last all day, or at least a good part of it.

Jan:

Thanks for the recommendation. I'll ask for a standing order next time I go in. I guess it could be millions of things now that I know it isn't a SCN4A deal but I wonder if it's still an electrolyte issue. Unfortunately I don't know enough about ion channels or muscle function to formulate a CLCN1 related hypothesis. The only things which really seems to be correlated with it are sleep and excessive heat.

Jenna

Type of Myotonia: Becker