I get the twitching too, from mildly amusing to really annoying. It doesn't seem to be localised to any one area, any muscle will do, but the bigger muscles groups do seem to suffer the most.
I know what you mean. I've wanted to send thankyou cards to every researcher who's published a paper on myotonia because I have to admit, from a practical perspective, there are "better" things to study. I imagine though, with advances in nanotechnology and bioengineering that ion channels will become more of an interest to the scientific community in the future.
I also find many of the descriptions of myotonia congenita in medical literature a bit understated,though this seems to be improving. I actually find the very very old descriptions to be a little more accurate because they were written before there was an established protocol for writing research papers, and the researchers/doctors were willing to be more liberal and candid with their thoughts, and state all of the patient's or subjects complaints. Researchers today have a lot on the line and so are less willing to commit to saying things they feel might be relevant but haven't substantiated.
Concerning the sensations....
I do get twitches from time to time but in my case I'm pretty sure I'm just crimping a nerve somewhere. These other sensations I get after walking, I'm not convinced are actual muscle fibre contractions. The more I think about it the more I think it's some type of atypical electrical activity elsewhere in the muscle, because I feel some of them propagate down a nerve to the bottom of my foot.
Hey, i'm new here on these forums.
I'm 19 and i play basketball on a decent level.
I have the twitches too once in a while.
sometimes while using Mexitil (a medicine that helps my muscels ALOT to be honest) - i guess it's a side effect
sometimes when i'm not on any
On both cases i've experienced them the most in my legs (cavs mostly)
Any confirmation that this might be cause of Beckers?
To be honest I have nothing beyond speculation that it's related to the MC.
I started getting the sensations shortly before the onset of the actual myotonic cramping.
I think there are symptoms to some forms of MC that are overshadowed by the myotonic cramping itself, and I think I started experiencing them at a very early age.
The disorder has a high degree of symptom variability because there are so many different mutations that can cause it and everyone is a little different.
It would be interesting if there was a large study done to see if certain symptoms correlated with certain mutations. I wouldn't be surprised if that were the case.