Jenna,
That is so funny. I had the same problem with window washing. I'd start on the kitchen windows, gravitate to the living room windows, and never make it to the bedroom windows. I guess the solution is to "start" with the bedroom windows the next time....if I can remember to do that!
Mary

Type of Myotonia: Thomsens

Country: USA

While reading your posts about window washing I remember how much I hated doing car washes for fundraisers in high school. There's something about that circular motion, whether it's washing windows or washing and waxing a car, that really taxes the muscles.

Jan

Type of Myotonia: Thomsen's MC

Country: US

Thanks guys. Im overwhelmed by the response and interesteing stories. I think i will see my GP about the vitamins and from January I will also try and take a lot of rest. Im having a har time this winter. It seems a lot colder dont you think?
Anyway il keep looking every few days and agree that we should try to help each other.

Type of Myotonia: Unknown

Country: England

Careful not to rest too much though. I stopped going to the gym last year (after going for a few months) and two days ago I went to help move a shelf...I helped get it down a few steps on a dolly by making sure it didn't fall off, and picked up another 15lb dolly and moved it a few feet. It was really nothing but the next day my arms and hands were very sore and weak and I had the worst bout of myotonia in them that I've had for a while. Turning the car steering wheel felt like I was on the last few reps of something at the gym and I nearly flung a mug of water right out of the microwave because I didn't realize I wasn't going to be letting go quite so fast after I put it in.

I'm sure this would not have happened had I been working out on a regular basis.

Type of Myotonia: Becker

Hi Z,
I have experienced similar fatigue and aches post exercise. I was still playing sport competitively until quite recently and hope to do so again but yes after training I was exhausted. Some days worse then others of course. On tegretol now but I hope that maybe through a good yoga regime and training I can overcome (at least to an extent) the motonia.
Good luck.

Type of Myotonia: Beckers (not certain)

Country: Ireland

I am so relieved to hear about other people who are having similar issues. Since I also have some permanent muscle damage, I am very limited to the physical activity I can do. Walking for 15 minutes to 1/2 hour is about my maximum before I literally can not walk another step (Can you say inconvenient?)

My Neurologist suggested stretching excercises three times per day. (I always do at least two). This has helped considerably with the muscle cramping and stiffness.

I also plan ahead a great deal, it is simply a fact of life that my mobility is limited. We are going on a cruise soon, and have a scooter rented to take me to and from my cabin. Then I can use my cane or my husband to lean on once I get where I am going. I was extremely resistant to using a cane at 53, but when I finally did start using it on bad days, I found that I could go farther, for longer periods of time, and Much Faster! People in back of me everywhere appreciate that!

Thanks for the suggestions everyone, please keep them coming. MC is a lot like running a car on a quarter tank of gas and trying to go the same distance that someone with a full tank of gas goes.

Happy New Year everyone.

Type of Myotonia: MC with permanent muscle damage and atrophy

Country: USA