Fairly sure I had full blown symptoms from birth. Early recollections of 'falling' off and over from about 3 years olds. Unfortunately didnt get diagnosed until aged 10. Parents thought that I was initially windin them up and then that it was all psychological. Dont blame them as it is a funny condition if you dont know what it is and what the syptoms are.
I was the same as Jan remember getting muscle stiffness from around 9 or 10 and over the years have broke bones through faling but i have learnerd to live with it and am keeping an eye on my kids for the symptoms but fingers crossed none of them have shown any yet