Hi folks,
This past weekend I saw the movie "Extraordinary Measures," about the father of two children with Pompe disease (a severe form of Muscular Dystrophy) who never gave up finding help for his children. The movie is well worth seeing (folks in the theater even applauded at the end of it).
The message is hope and persistence, qualities I need to work on a bit more!!
This month's "Quest" magazine also contained an article about this movie.
I hope you all get a chance to see it.
Mary
Thanks - I heard an interview on public radio today, with the father of the 2 kids this movie is based on. Very interesting stuff from a medical perspective - though tragic from a 'mommy' point of view. Lois
Type of Myotonia: Myotonia Congenita, Becker's type