Jodi - I couldn't agree more - - - People really need to be vocal about their experiences with physicians. For way too long, folks have been intimidated, thinking that doctors were sacrosanct, and didn't realize that they had the right to send letters to their medical groups, insurance companies, state medical boards, hospital ombudsmen, and other groups that review and do oversight and quality management of the doctors who practice under their jurisdiction. Feedback about doctors who don't listen well, who omit or alter information, who marginalize or dismiss complaints, etc., really CAN help in counseling doctors and improving overall care and patient satisfaction. And the source can be kept strictly confidential. Lois
Type of Myotonia: Myotonia Congenita, Becker's type