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I don't take it, but will make a call tomorrow!
Type of Myotonia: Myotonia Congenita, Becker's type
Country: USA
I thought they were going to continue to produce it and were just behind on production?
Type of Myotonia: Becker
Shouldn't the MDA be advocating with us (or for us)? They spend many millions to research effective treatments, yet mexiletine is like a cure for many of us.
Type of Myotonia: Thomsens
Country: NJ USA
I contacted them when my medication (Pronestyl and/or Procainamide) was disontinued and got not a call or even an email back. Very disappointing.
Type of Myotonia: Myotonia Congenita