What a truly fantastic idea - I know next to nothing about setting things up technically, but I am very willing to help with writing, brain-storming, whatever I can do. Just e-mail me or send me a message on my Wall on Facebook - Lois Harford. I'm easy to find!
(Also, if you want to post my letter that is on the main website page, it's OK, but maybe without all my personal info - let me know, and I'll send an edited version. lois
Type of Myotonia: Myotonia Congenita, Becker's type