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Re: Its all new to me

I have Becker's variant MC and my symptoms are quite bad occurring thoughout my body and not just in my hands. I take Mexitil and that has helped tremendously but I still have the MC.

However, don't give up hope. Despite my condition I'm in full employment, I've travelled around Europe, go to rock concerts, visit archaeological sites, socialise, got married, had kids - in fact I live a pretty full life

MC is a condition that can be controlled with therapy, medication and learning coping strategies. With you along to help I'm sure that Ashton will get along in life as well as any other kid, just be positive about it from the start and please don't become too protective; experience is the best teacher.

Wishing you the all best!

Type of Myotonia: Becker's

Country: England

Re: Its all new to me

Thanks Pete
Ashton is a determined tough little guy =) thanks for the encouraging words. Sure means a lot to a Mommy knowing there are people out there living full wonderful lives!

Re: Its all new to me

I think I first started getting some mild isolated attacks of myotonia in my hands when I was about 6 which I really didn't think much of. I did have some weird sensations in my legs at the time but not actual myotonia.

It wasn't really until I was about 9 or 10 that it really hit me in the legs.

But as Lois said, most of us learn to live with it.

Skating on the side walk.
Ice skating.
Skateboarding.
Gymnastics.
Softball
BMX biking.
Getting to the phone in time...these were the things I could not do.

Skating on a smooth surface with things to grab onto to stop.
Karate.
Tree climbing.
Regular bike riding.
Not letting go of the phone when my sister tried to take it from me...these were the things I could do.
I also managed skiing a few times before I nearly killed myself getting off of a chair lift.

Type of Myotonia: Becker

Country: USA