Return to Website

Myotonia Congenita Forum

 

This forum has been closed for comments.  You can still search archived messages.

 

Visit  the Non-Dystrophic Myotonias  Facebook Group

Myotonia Congenita Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: Newly Diagnosed

Hi Melissa, wow, you're the first one I've heard of that has the severe pain associated with your beckers besides me. Mine is so intense that it takes over a week to recover from an attack. It takes very little to cause an attack. Mexilitine was not a good fit for me. Jan had suggested that I have my docs check for some deficiencies and I will now persue that as I was just turned down for a myotonia profile test. Best of luck with your health...keep smiling

Type of Myotonia: not definite but possibly mc beckers

Country: u.s.a.

Re: Newly Diagnosed

David
Yes the pain is terrible. I have just increased my Mexilitine to three times a day. I will go back to the md on the 20th with a lot of questions for him and hope I can get some answers. My med adjustments have been done with my doctor making rounds on the floor where I am working because he says, "Mrs. Freeman you sure are stiff today." I just want to say thanks for observing but then I am glad he sees my struggling.
Good luck to you too David.
Melissa