Hi Melissa, wow, you're the first one I've heard of that has the severe pain associated with your beckers besides me. Mine is so intense that it takes over a week to recover from an attack. It takes very little to cause an attack. Mexilitine was not a good fit for me. Jan had suggested that I have my docs check for some deficiencies and I will now persue that as I was just turned down for a myotonia profile test. Best of luck with your health...keep smiling
Type of Myotonia: not definite but possibly mc beckers
David
Yes the pain is terrible. I have just increased my Mexilitine to three times a day. I will go back to the md on the 20th with a lot of questions for him and hope I can get some answers. My med adjustments have been done with my doctor making rounds on the floor where I am working because he says, "Mrs. Freeman you sure are stiff today." I just want to say thanks for observing but then I am glad he sees my struggling.
Good luck to you too David.
Melissa