Sorry I'm just now saying hello...

How did it go with the doctor?

Hugs,
Tracy

Type of Myotonia: SCN4A

Country: USA

Well the doctor visit went as it usually does. I don't know why I even bother. He wasn't even concerned about my new symptoms. He even got agitated when I questiond why he wrote my prescription for 150 mg of mexiletine instead of 250 which I have been taking for a year now. He even told the nurse when I called them back after checking with the drugstore that it didn't even come in 250 mgs. If anyone knows of a good doctor in Mississippi please let me know. I'm through with this one.
Thanks,
Teresa

Type of Myotonia: un-known

Country: USA

Hi,
Might I recommend you send a letter to Dr Stephen Cannon at UT Southwestern, Dallas.
I have had good luck at direct communication with university faculty doctors. I sent a letter to Dr. Robert Griggs and he answered with an email. I did go to some effort to keep it to a single page.

UT Southwestern is one of three centers in the US with special knowledge of rare (myotonic) neuromuscular diseases.
UT Southwestern is about 300 miles west of Jackson, MS and I20 is almost straight.

Type of Myotonia: SCN4A

Country: us