Only too glad to help someone navigate the "medical minefield"...

I believe it would help if you took a copy of "Lois Harford's letter for Healthcare Providers" and "Janet Stone's letter for School Staff" with you... They both offer a very accurate and succinct description of MC, and will facilitate your request.

I cannot offer medical advice, however, my experience with both prescribed and non-prescribed medications has never been entirely successful, with exception to managing the anxiety. I dont expect to be able to eliminate the symptoms, but for me, relief from the anxiety has always been of more benefit. Over the years I have developed both a high pain tolerance and created many strategies for compensating and or dealing with the physical effects of MC.

Although not a recognised prescribed treatment for MC, I use Dexedrine to treat the anxiety, and some of the physical symptoms. This cannot be prescribed in Australia unless you are diagnosed ADHD. I have found accepting this diagnosis to be of more benefit than relying on other ways to cope, such as alcohol etc...

I hope you find a solution that works for you !

Mark

Type of Myotonia: Thomsens

Country: Australia

Hi,

I am in Canberra. Originally I was put on to Mexitil by a neurologist but after moving to Canberra, I simply informed my GP that I needed a prescription for Mexitil. Since then a couple of GPs have prescribed it for me. They look it up and have no issue. Of course, none of them understand MC, but who does. Only a neurologist would.

Unfortunately I no longer take Mexitil because the side effects far outweighed the benefits. It turns out I am in the small percentage of people who have high sensitivity to all medications.

Good luck,

Jill

Type of Myotonia: Beckers

Country: Australia

I think the point here is... do the contraindications outweigh the potential benefits ?


So, I guess the question remains... What is a good doctor ?

Type of Myotonia: Thomsens

Country: Australia