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Clinical Trials at The University of Kansas Medical Center

Oh yes! I was part of the clinical trial at the University of Kansas Medical Center. They got a large grant to study why Mexiletine is so effective. It took several months and it was quite an experience. As mentioned in another post, they are now petitioning for a research study of Lacosamide because it has been effective in animals. I just saw my neurologist last week and was started on Lacosamide. I'll keep you posted. The UKMC has a specialty group of neurologists that study Muscular Dystrophy and specifically the Myotonias. Stuart

Type of Myotonia: Thomsens

Country: USA

Re: Clinical Trials at The University of Kansas Medical Center

Hey Stuart

I have great results with Mexiletine. If you would feel like it, could you post some of your insights for me?
Also how is the Lacosamide working out so far?

greets Nick

Type of Myotonia: Becker's

Country: Belgium