Joshua, Thank you so much for sharing your detailed experience with us. The MC is so often much worse to experience than the literature describes. From what you read in the literature, its just a slightly stiff muscle and nothing more. Its way, way, way more involved as you so eloquently described. One day, perhaps the medical community will understand. I went through a lot of pain and suffering in a research study on MC here in Kansas City so that perhaps one day they CAN understand. Hang in there. Its all any of us can do. Have you tried Mexiletine? If not, you need to see your neurologist and demand it. All the best, Stuart

Type of Myotonia: Thomsens

Country: USA

Great post, can relate to it all. For me in the morning its putting my socks on. Maybe a combination of MC and age (though only 51) but my wife now helps out cutting my toenails. Also hate having to get up in a meeting and walk to the front to give a presentation. Guess it is and was harder when I was younger as now my peers are much more accepting and less of a pain than they were when I was a kid.

Country: UK

This is something I say to people, when asked why I think it's so bad. I'm glad there are others that feel the same. Others see it as a small annoyance, but when you live with it day after day, with a fear of doing the smallest task or motor movement, it's not just a small pesky annoyance. It's a struggle day after day to try and live a normal life.

Type of Myotonia: Beckers

Country: Canada