Hey
I am Violet* and I have Thomsen's Disease. I am 12 years old and it was diagnosed when I was 5. Just wondering if there are any other girls out there with it.

Type of Myotonia: Thomsen's Disease

Country: Australia

Welcome, Violet!

We have had several people on the forum who were about your age, but unfortunately they didn't give their email addresses so I can't ask them to contact you.

My granddaughter is twelve and has MC. If you'd like to email me your address I'll send you a link to her Facebook page.

Jan

Type of Myotonia: Thomsen's

Country: USA

hello violet i am stevie and i am 9 i too have myotonia and i was diagnosed when i was two i live on th gold coast in australia i would love to chat with you what we have is not much fun

Type of Myotonia: beckers

Country: australia