We have had several people on the forum who were about your age, but unfortunately they didn't give their email addresses so I can't ask them to contact you.
My granddaughter is twelve and has MC. If you'd like to email me your address I'll send you a link to her Facebook page.
hello violet i am stevie and i am 9 i too have myotonia and i was diagnosed when i was two i live on th gold coast in australia i would love to chat with you what we have is not much fun