If you haven't checked out Jenna's Facebook group for all the myotonias, here's the link:

Facebook - Myotonias

You can keep in touch daily with lots of myotonia friends from around the world.

Jan

Type of Myotonia: Thomsen's

Country: USA

The group was actually started by Caz Repton and focuses on all of the myotonia involving disorders. There is also one for myotonia congenita specifically but it doesn't have as much activity.

They are both great groups though :-)

Type of Myotonia: Becker

Country: USA

I'm not a fan of facebook but I will have look at this group - I only joined to keep in touch with a friend who lived in Australia!

Type of Myotonia: Becker's

Country: England