Hi Jan,
As I said the doctor is trying me on baclofen. I can actually feel as the medication goes to work with my muscles relaxing somewhat. I am only on a very low dose and plan on staying on as low a dose as I can possibly get relief. My thoughts are: I have done research and have not found any evidence baclofen is effective for myotonia congenita. Therefore I feel a diagnosis of Isaac's is going to be correct. What are your thoughts?
Teresa