Hello Heini,

Raising the dosage is always a possibility. I a review scheduled for a few months time when we will discuss this problem.

My doctor is aware that this is very much a trial, neither of us know if it is going to be the answer. Of course with Flecainide being a heart drug there is always the danger of damaging my own heart and that is something I wish to avoid.

Type of Myotonia: Becker's

Country: England

One of the definite benefits of Mexitil was that it reduced the instance of cramp that I suffered. I experienced some pretty bad attacks of cramp and seizures previously so the few years I had on Mexitil was a real relief.

Immediately I started Flecainide the cramp receeded but now it has started to return. I have experienced cramp in both my left and right side of my torso seperately. The most troubling aspect, however, is that I do not seem to have done anything to provoke the cramp. In one instance I was simply sat still, in another I was gently pushing an empty shopping trolly. There was no strenuous activity whatsoever, but the cramp certainly hurt.

I'm not giving up on the Flecainide yet, not least because it is still reducing my myotonic symptoms, I'm just noting that it is not a cure, which I suppose was to be expected.

Type of Myotonia: Becker's

Country: England

Hello, In Romania we do not have Ritalmex. I found it for my mother only in Hungary.

Anca

Country: Romania

It is a problem that some drugs are available in one country but not another.

I am quite happy with the Flecainide now. It has not suppressed all of the myotonic symptoms, I still have to be careful to avoid trips, cramps, etc., and I still get occassional bouts of vertigo.

I think that without this drug I would have really struggled to get through my last bout of surgery so I reckon that I will be using it for many years to come yet.

Type of Myotonia: Becker's

Country: England