Just to add another piece of the puzzle. I've read that adrenaline causes the body to release acetycholine between the muscle and nerve junction....kind of like a primer. It's the autonomic nervous system's way of saying "Here, let me contract those muscles for you!"

We had a few small earth quakes a few weeks ago that took me by surprise and I was pretty much symptom free before and during but then I made the mistake of sitting back down before I had metabolized the adrenaline and when I stood up a few seconds later...well, that's all I did, was stand up. I had instant lead legs. I went from a 1.5 to a 6 pr 7 on a scale from 1-10.

Type of Myotonia: Becker

Country: USA

Ryan:

Many of us notice our symptoms become more mild with regular exercise, and many individuals with MC have seemed to come to this conclusion independently. The reason for this is unknown. I could only speculate as to why cold tends to make MC worse...it's probably something to do with the fact that cold tends to cause people to tense up anyway, so maybe we just experience an amplification of that process. I live not far from the beach and on cold days sometimes the wind funnels down the street and strikes the back of my neck as I'm walking and my neck muscles in the back will contract instantly to where I can't relax them at all, and Instantly start to get a massive headache from the neck strain.

I have problems with weakness in my hands as well though I'm not really sure what causes it. I've had severe weakness that has coincided with myotonic attacks in my hands, precipitated by strenuous activity, where my hands were both difficult to relax, and weak, and burned, and I've develop weakness in my hands...often after strenuous activity, without much myotonia. When I was in school, and had to do a lot of writing, by the end of the quarter I had a lot of trouble with my hands. Sometimes I have to rest them halfway through address an envelope, sometimes I can write a few pages of things. I wish there were something I could do about it but I've yet to find anything that helps.

Type of Myotonia: Becker

Country: USA

I have yet to actually meet anyone with MC but this forum has at least allowed me to share experiences with other people who understand what I've been through. That's one of the great things about this site.

I've also learnt more about MC since posting on here than I did in 30 years of medical care!

Just to reciprocate, if you have any questions then fire away!

Type of Myotonia: Becker's

Country: England