To add to that...it occurred to me today that I usually have more of a problem in situations where I feel I need a finer degree of control in my load bearing muscles, ie my legs. If you imagine the degree to which most people can contract their muscles ranged from 0-10 with increments of 0.1, imagine in my legs, for less than mild movements, I only have increments of 3. I believe that at any given time there are also 4 abnormal phenomena occurring in my muscles.

1. Myotonia (Stiffness/cramping: due to poor chloride conductance)

2. The warm up effect (The illusion of normal function: due to metabolic poisoning?)

3. A depolarization conduction block (Weakness: Pathology unknown)

4. A compensation mechanism against the depolarization block (Something about an abnormal pattern of muscle fiber activation)

This collimates in strange things that only I and the likes of others such as my self can understand.

Type of Myotonia: Becker

Country: USA

I have the same thing, especially crossing big, wide open spaces. I figured it out that it's all anxiety. I get so worked up that I have panic attacks. As much as I try to tell myself not to stress about a situation, I still do, so it totally affects my ability to get around successfully. Seems to me that it comes in waves as well, as sometimes I'm "OK" and other times, I get so anxious that I am literally pouring with sweat as a result. Sometimes the cane wouldn't even help me because I was so worked up with the fear that I was going to fall in the middle of a big street or in front of people and ultimately hurt myself again.

Country: USA

Rolma,
Turns out you may be right. I saw a new MDA Dr yesterday. She also agreed that it is anxiety. My MD just put me on an antianxiety med a few days ago for other symptoms. The MDA Dr said that it should help this also. I sure hope it does. I will let you know.
Suzi

Type of Myotonia: ?

Country: usa

Suzi,

were you having the same symptoms? I find that the anxiety really gets bad if I have to go around someone on the street because I'm afraid of them bumping into me and also that I'll fall in front of them. My husband doesn't understand it, but then again, he doesn't have to deal with what we do on a daily basis.

Country: USA

Rolma,
Yes, same symptoms. I was a a convention this weekend and had stopped to talk to someone when they left I was left standing there not being able to move I saw a friend and called him over and asked him to help me get to a seat. Thank goodness he was there.
The new meds have helped already with less panic attacks and better sleep. The MD said I would see results in two and a half weeks But I saw results in a few days.
Suzi

Type of Myotonia: ?

Country: usa

Suzi,

What did they put you on, if you don't mind me asking.

Country: USA