Return to Website

Myotonia Congenita Forum

 

This forum has been closed for comments.  You can still search archived messages.

 

Visit  the Non-Dystrophic Myotonias  Facebook Group

Myotonia Congenita Forum
Start a New Topic 
Author
Comment
View Entire Thread
Re: Work and muscles: Fine line.

Myotonia Congenita could be defined as a condition of ever decreasing circles.

The MC makes our muscles sluggish so we try harder to move them, get tired quicker, out muscles get bigger but they don't get any stronger. Because they are now bigger we have to try harder to move them which means...well, you get the picture.

My job is sedentary, it is just the most comfortable way for me to work. I accept this limitation on my worklife because by doing so I can at least still work.

Accepting this doesn't make your experience any less annoying, it is just one of the things we don't have any control over. I get frustrated with the limitations my body imposes on me some days, and venting at least helps to release some of the stress that builds up (as does killing things on my X-Box 360!)

Type of Myotonia: Becker's

Country: England

Re: Work and muscles: Fine line.

Try replacing some of the snacking with targeted, moderate intensity workouts that last from 5-10 minutes.

This sounds counterintuitive, but tasks that require you to stand or to sit still cause more fatigue when they aren't broken up with exercise because the exercise itself lowers "semi-resting" muscle tension and improves endurance.

Unfortunately, I canNOT make my muscles warm up enough to exercise first thing in the morning without risking injury. But prolonged standing after a short workout is WAY easier than before.

You may initially have more fatigue from simply being out of shape, but as your body adjusts, the muscular benefits don't decrease. Thank goodness!

Type of Myotonia: Thomsen's

Country: USA