I've had myotonia since birth.i'm not so sure if it was noticable as a baby,but maybe before i was a toddler. my mother has it her father had it.my mother was the only child in her family that got it.my mother had 10 kids her first three did not get it ,her next 5 did ,her next child did not but her last did.my myotonia bothers me when i'm out in the cold,sometimes when it rains,it will bother me if i get up in the mornings and do some walking around where my muscles warm up and then go back to bed i will wake up stiff.sometimes i feel nauseous.it bothers all my muscles.eyelids,tongue,feet,legs,hands ect.. i've never noticed any stiffness with swallowing.in the winter i always sleep with a heating blanket so i don't get stiff .which myotonia does this sound like?

Type of Myotonia: unsure

Country: USA

Assuming it is true myotonia, since it runs in multiple generations of your family, it is likely a dominant myotonia causing disorder, and thus could be Thomsen Myotonia Congenita, or a sodium channel myotonia such as paramyotonia or acetazolamide responsive/potassium aggravated myotonia.

If you have the warm up effect and it gets easier to move with movement...at least until you sit back down, and you do not have any profound or progressive weakness in your family, it's likely Thomsen Myotonia Congenita.

Type of Myotonia: Becker

Country: USA

I feel nauseated when my stomach muscles cramp.

Type of Myotonia: Thomsen's

Country: USA