I used to be able to walk forever but run, no. I once worked up to a slow, cumbersome walk jog of a distance of 1.5 or two miles and only bad things came of it.

Recently I've managed to walk jog 1.5 miles home. But it's down hill and during the cooler part of the day. I would say I'm bad at running because I'm an endomorph and most of the mass is in my legs, but my mother is a petite mesomorph with skinny legs and could never do more than 1.5 miles either. I just don't have the genes.

Type of Myotonia: Becker

Country: USA

The tightness of my knee ligaments don't let be run anymore. I can't seem to get them to relax no matter what I do! Not enough. And PTs just say, "Huh. Sucks to be you." Nice.

I always had very high proteinuria when I exercised heavily--I think because it was SO much more work for me than for other people. I've done a 5k. It my best, I could run 3.5 miles--ok, slowly jog 3.5 miles! But I've walked more than twenty miles in a day several times, and at quite brisk pace.

Type of Myotonia: Thomsen's

Country: USA

I have to say that as a personal trainer and rehab therapist I saw a lot of "normal" people who had issues with tight tendons and other muscle/ligament/tendon issues. We tend to blame everything on MC, but the general population deals with many of these things, too.

I think genetics plays a big role in how much and what kind of exercise we tolerate and how we respond to the wear and tear over the years. Not just MC, but many other inherited tendencies which can affect how we heal from injuries, surgeries, etc.

I have poor exercise tolerance because I have low phosphorus levels from another genetic disorder...I can't make enough ATP to keep up with the demand. I still stay as active as I can, but pushing too much is actually life-threatening for me because it affects my heart.

So I do encourage exercise but realize that each person has a unique set of genes that are going to determine how they react to it, especially when they have myotonia.

Jan

Type of Myotonia: Thomsen's

Country: USA