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Re: Working Out With Myotonia

I have to say that as a personal trainer and rehab therapist I saw a lot of "normal" people who had issues with tight tendons and other muscle/ligament/tendon issues. We tend to blame everything on MC, but the general population deals with many of these things, too.

I think genetics plays a big role in how much and what kind of exercise we tolerate and how we respond to the wear and tear over the years. Not just MC, but many other inherited tendencies which can affect how we heal from injuries, surgeries, etc.

I have poor exercise tolerance because I have low phosphorus levels from another genetic disorder...I can't make enough ATP to keep up with the demand. I still stay as active as I can, but pushing too much is actually life-threatening for me because it affects my heart.

So I do encourage exercise but realize that each person has a unique set of genes that are going to determine how they react to it, especially when they have myotonia.

Jan

Type of Myotonia: Thomsen's

Country: USA