Two flights of stairs sounds like an awful lot. I think about that and it makes me cringe. And I feel for your daughter with the bus steps--those were the worst.

But every time we walk those steps and they don't beat us we get stronger.

Type of Myotonia: Thomsens

Country: USA

Reading the story about the day in life of MC makes me think about the fact that I've had it easy with my condition. I never had too much trouble in getting out of bed in the morning or going up a couple of stairs. But if there were like half a dozen of steps or more would that have been quite an ordeal. Especially in school when we would go upstairs in group. I always had to leave behind so I wouldn't look like an idiot in front of my classmates. Especially in elementary school where they wouldn't understand when I told them that I was "stiff". At the time I myself didn't know what was wrong with me nor did my parents.

It was only after 7th grade when I went to see the school's nurse and told her that I thought there was something wrong with me. She arranged a meeting to a neurologist and then I got the diagnosis. But I can manage quite good in normal life. I am 25 years old and I do pretty laborious work for a living as a carpenter and I can manage my condition and so can my co-workers, because I have told them that I had to stretch before lifting something heavy and they understand that.

I fear that if my wife and I ever have the joy of having kids they would get the same condition that I have and would have to go trough the same ordeals I had. But at least i will know if they are experiencing trouble moving around and give my full support and understanding for them. It is terrible time for a child if he doesn't know the reason for him being different than others. My children won't have that problem.

Type of Myotonia: Thomsens

Country: Finland

That's great Ville that you have learned how to manage your co-workers doing carpentry. I used to deliver pizzas and then rehabbed houses, so I know how difficult that can get at times.

Also I think if your kids have MC, and you provide them the love you talk about, that will give them the strength to take on any challenge.

Type of Myotonia: Thomsens

Country: USA