Hi again, Raja -
There is no need for an inferiority complex any more than there would be if one had diabetes or polio or a birthmark, etc. Pretty much everyone has something - and they all feel they have something to hide!

My husband and I have been married almost 36 years. Our marriage has been perfectly normal in all respects. We have a wonderful son who is 31 years old. He doesn't have MC- because our type is recessive, it is very unlikely, unless you marry someone who is related to you, or if you are from a very small village where there is a lot of intermarriage, that your children will have MC. They may carry the gene, but even that is only a 50/50 chance, and if they also marry unrelated people, then the likelihood gets even lower.

Jan has been married a very long time, too. Many of us have. We have perfectly normal relationships, and some kids (particularly the Thomsen's folks) do have MC, but also don't seem to mind - I think because they were able to see how normal and happy their parents were).

As I said before, everyone has issues, so, for instance, I LOVED to dance, but my husband, who happens to be a musician, didn't like to dance, so it is something we just never did! But that is normal give and take in a marriage - or a friendship.

I would definitely suggest that you be open with your intended, whenever that happens - it is NOT a shameful thing, and it will save her from feeling that you don't want to participate in things, instead of allowing her to understand why you are hesitant to do them. And - it also gives you the freedom to try things at your own pace without being self-conscious. Heck, I rode horses and ice-skated and many other activities - just a bit slower and smarter. You CAN do anything! One member here even went on a very long bicycle tour, I think it was the Alps - he was told he couldn't, but he did it and loved it (yes, he was sore and tired, but happy and proud!)

(PS - I know a lovely young man from India who I met through this forum - he, too, was terrified about being a husband and parent - and he has a gorgeous wife and 2 lovely young boys... he might be a good person for you to talk with, if you'd like. I could ask him if he's willing) Lois

Type of Myotonia: Becker's type

Country: USA

Dear Lois,
> Thanks for your Reply.
I'm Very happy to hear those positive replies from you.
Hope those will help me to have a positive vision over the world.
I'm sure to be in touch with the person Venkat, whom you have referred.

Thanks again.
"ll get back to you with some positive feed backs.

Regards
- RAJA

Type : Becker's

Type of Myotonia: Becker

Country: India

Hi Raja - I am presuming, since you noted Venkat's name, that he did contact you? So, I hope you get a chance to talk with/message with him. I think he's such a nice person, and he may help you feel so much more at ease with yourself! lois

Type of Myotonia: Becker's

Country: USA

Raja:

If you do indeed have Becker MC, while it might make the myotonia temporarily worse, you might try walking for 20-40 minutes at a brisk pace everyday. Also if you are overweight, you should attempt to lose it. Over the course of 6 months to a year, you might see a decrease in the severity of the myotonia. As Jan said, be careful not to push against the myotonia. Wait for your muscles to relax before you try to move again. That alone might eventually lead to a notable decrease in the severity.

There is medication. The most effective medication for Thomsen and Becker MC seems to be Mexiletine, but you must be monitored by a cardiologist while starting the medication and while on it. It's a heart medication and can cause life threatening problems if not used carefully. There are other medications available but I'm not as familiar with them. They can all have intolerable side effects, and many people with MC find it's better to manage their condition with lifestyle.

Can you describe the nature of your weakness a little more? Is this something you wake up with? Or does it come on in the middle of something? Does it seem to be temperature dependent? Or does it seem to come on after doing something strenuous? Is it always accompanied by increased myotonia?

Also, how understanding are people in your area about disabilities? If they are generally understanding you might just try talking to them a bit about it if they notice your symptoms.

Type of Myotonia: Becker

Country: USA

Dear guys,
I am so glad to share this with you all..
I'm Not sure about this. Pls give me back your suggestions..
From March'15 I'm Regularly eating an Apple in the Morning & Having Minimum 2 cups of Green tea.
For the Past one week, I'm Seeing lot of changes in my stiffness.
My stiffness has reduced a lot & Even i can get up from the bed easily, (Stiffness still there for taking the first step after getting up)
I'm Not sure whether this is because having these two regularly or the hot climate (Summer season has started here in India)prevailing here..

Kindly share your suggestions..

Regards,
Raja..

Type of Myotonia: Becker

Country: India

Hello, Raja
I don't have Becker's but do have myotonia and my Dr. suggested I take the supplement Magnesium Citrate every day. Magnesium helps with muscle movement. I find it very helpful and take it every day.
Cheers

Type of Myotonia: DM1

Country: US & France