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Visit the Non-Dystrophic Myotonias Facebook Group
If you click on "Return to Website" above and read through the letters and stories you'll get a lot of information. This is a good scientific paper on myotonia: http://dare.ubn.kun.nl/bitstream/2066/74857/1/74857.pdf It takes a minute to load, but has good medical information. It covers all the non-dystrophic myotonias, not just myotonia congenita. Jan
Type of Myotonia: Thomsen's
Country: USA