Thanks alot for your help!

This is my first time on the site!! It is amazing to read how other people are going through the same thing as me!I have never met anyone else with this disease other than my two brothers so this is awesome. I feel alot more comfortable knowing that I am not completely alone!I have been on it for hours just reading peoples stories. I had no idea that diet had a huge factor to play in how my muscles react. My mexiletine helps alot but I am definitely going to change my diet up a bit and see if that helps.

Thanks for making me feel welcome!

Type of Myotonia: Not too sure

Country: Canada

I'm glad the stories were helpful. I didn't meet anyone outside of my family with MC for about 15 years after I was diagnosed and none of my doctors had a clue what it was like. If you haven't gone to the main website yet, there is some information there, too (click on the link "Return to Website" above).

Changing my diet made a huge difference for me and I do get emails from many people who tell me it helped them, also. But others say it didn't seem to make any difference. I suspect it has to do with the particular mutations and how much potassium and insulin affects the function. It's worth a try :-)

I'm glad you're able to get mexiletine in Canada. I wish we could get it to everyone who needs it in Europe and other areas where it was discontinued.

Jan

Type of Myotonia: Thomsen's

Country: USA