When I was growing up with MC it was a very lonely, and occassionaly scary, time. It was not until the internet became generally available that I was able to talk to other people with the same condition.

I would encourage young people like Emil to make the most of forums like this learn as much as they can about MC, share their experiences with others, and learn to cope.

MC remains a difficult condition to deal with but there's no reason to be alone anymore. Good luck to all of you.

Type of Myotonia: Becker's

Country: England

hey emil!
My names Paige and I'm 12, and I have becker type MC. I found out when i was 8, but my mum knew since i was little. Like you, i used to get teased for not being able to do things like running ect;. It does get better though, as you learn to live with it, and hopefully you will find that people won't tease you as much now you know you have MC.
At my school, all the teachers know about me and so do the kids, however i do always feel self-conscious when walking up stairs and getting up from chairs and the floor and things.

from paige :)

Type of Myotonia: becker

Country: UK

Emil, everyone has nightmares of being chased and they can't run, that's not specificto us. It is normal :)

Type of Myotonia: Thomsen's

Country: Leming, TX