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Monte, you will find many of your questions answered in this information sheet: Letter for School Staff Those are great questions and I hope several people will see it and respond. I will try to get back to you with a detailed reply later. Jan
Type of Myotonia: Thomsen's
Country: US
Jan, absolutely brilliant letter. Just wish there was something like it when I was at school would have saved me loads of embarrassment and headaches (literally).
Country: England
You need to obtain a copy of the pdf "redefining the non-dystrophic myotonic syndromes" You also should search for: quality of life skeletal muscle, without quotes to find quality if life studies pertaining to ion channelopathies.
Type of Myotonia: scn4a
Country: USA