Thank you for the reply.

That seems to be the biggest problem for me, my symptoms don't totally fit any condition. I just briefly looked up neuromyotonia and CFS. I don't think I have neuromyotonia- I've read that it continues while you sleep? My twitching/cramping all stops when I'm asleep. CFS seems much closer- one of the symptoms listed is hyperreflexia which I have as well.

I guess I need an EMG, I'm just very reluctant to go get one as I'm worried it won't show anything.

Type of Myotonia: Unknown

Country: US

Hi, Dani
You did not mention your reference source, so may I recommend the
Washington University of St. Louis. If you Google the term "neuromuscular"
the second entry will be WUSTL.

The EMG test will show most but not all myotonias, mine was one that did not.

Type of Myotonia: SCN4a

Country: US