Thanks so much for the info. I love this forum. It really helps to know I can bounce different ideas off of people on this forum who actually know what I am going through & talking about. I think I will try to get my son to try the Mexitil again since I don't think he was up to the right dose to make a difference before he stopped. The quinine even has a generic is still terribly expensive.

Type of Myotonia: Thomsen

Country: USA