This is something I say to people, when asked why I think it's so bad. I'm glad there are others that feel the same. Others see it as a small annoyance, but when you live with it day after day, with a fear of doing the smallest task or motor movement, it's not just a small pesky annoyance. It's a struggle day after day to try and live a normal life.

Type of Myotonia: Beckers

Country: Canada