Hi, All,

It is my own experience that my stiffness lessens in hot weather (more than 32 degree centigrade). So it has been my dream to move to a place like Singapore where it is always summer.

But in this forum, I found there are patients from hot-climate countries like India. So my question is "Does hot temperature really help relieve mytonia symptoms?". Would like to hear experience from folks around the world.

Thanks,

Tom

Type of Myotonia: Not sure, most probably Thomson

Country: China

I am definitely better in warm weather. But I live at 2100 meters and have to deal with cold much of the year. I dress in layers, have very warm socks and boots and hats, and if I'm going to be out for long I wear the air-activated heat wraps on my neck or back to stay warmer.

Since this is something you will deal with the rest of your life, it's definitely worth considering a move to a warmer climate.

Jan

Type of Myotonia: Thomsen's

Country: US

Hi Tom:

While most people with myotonia that I have heard from on this subject say that cold aggravates their myotonia, a small number of people have said that heat aggravates their myotonia, though I think most of the people who said heat made their myotonia worse tended to have some form of periodic paralysis.

Cold tends to make my myotonia worse. In fact I have dislocated things before because my muscles got so tense in the cold that they've popped things out of place. Heat makes the weakness worse.

Type of Myotonia: Becker

Country: USA

Hi Tom

The same is to me: At about 32° Celsius I can move normally. No pain, no cramp, no stiffness.
But I do live in Switzerland :-( So sometimes I take a hot shower to enjoy that feeling of being healthy.

it is a dream of mine to live in a hot country, but there is everywhere aircondition and that would spoil the positiv effect of the heat.

Stephany

Type of Myotonia: unknown

Country: Switzerland

Hey Tom,
In my experience, heat does help but only through the form of showers and heating pads. Whenever i go on holiday or whenever it's summer time, my muscles go to pot and i become lethargic and sore. Although, i do seem to be able to move easier. This seems a good question which i think i'm going to talk to my specialist about.
from Paige
(Beckers)

Type of Myotonia: becker

Country: UK